A new model for end-of-life care in Victoria

Pink dash
Victorian Healthcare Association – 2018

Paper Giant facilitated a diverse and complex group of healthcare organisations to start working together, to implement the new assisted dying legislation in Victoria.

Outcomes

  • Co-design with a complex group of healthcare organisations
  • A model of care designed in response to new legislation

The impact of legislative change

In 2018, the Victorian Government passed legislation to allow eligible people to request an assisted death when faced with a terminal illness. When major healthcare legislation such as this is passed, providers across the state need to work through the complexity of enabling access for patients in their region. 

We were asked by the Victorian Healthcare Association (VHA) – the not-for-profit peak body supporting Victoria’s public health services – to help a working group of hospitals, aged-care facilities, palliative care organisations, and specialist health services work through this complexity. 

Redesigning services in a changing environment

The National Disability Insurance Scheme (NDIS) has resulted in a large-scale shift in the way disability services are funded and provided in Australia.

One of Australia’s largest disability service providers, Scope, is currently transforming core service and business models to respond to changing funding environments under the NDIS.

We partnered with Scope to help them understand their consumers, and design a new centre-based therapy service the maintains therapy quality, and helps government funding go further. 

Redesigning services in a changing environment

The National Disability Insurance Scheme (NDIS) has resulted in a large-scale shift in the way disability services are funded and provided in Australia.

One of Australia’s largest disability service providers, Scope, is currently transforming core service and business models to respond to changing funding environments under the NDIS.

We partnered with Scope to help them understand their consumers, and design a new centre-based therapy service the maintains therapy quality, and helps government funding go further. 

Assisted-dying-casestudy-image

Facilitating a diverse group to start working together

Paper Giant facilitated a workshop with the VHA working group to help them design a new ‘model of care’, by mapping the various issues their organisations would face in implementing this legislation. 

We collaborated with researchers at RMIT University to build empathy and a ‘patient-centred’ mindset into the workshop. This method used real-life patient cases to give participants the understanding needed to design a model with appropriate guidelines to enable fair access for everybody. 

Remaining patient-centred is a particular priority for these organisations. Each organisation faces unique pressures – some operate in a rural environment, many are under-resourced and under-staffed, and some have ethical and moral views that prohibit them from participating in voluntary assisted dying altogether.

By bringing this group together, we ensured that the model was designed from a system-wide perspective, rather than each individual organisation addressing only their own specific issues or operational limitations.

Assisted-dying-casestudy-image01

Strategies to improve end-of-life care

Once the workshop was complete, we worked with VHA to draft a model of care that the working group further developed and tested with service providers. This initial model of care was developed by VHA into a set of guidelines, principles, safeguards and practices for healthcare organisations to give patients the best set of care options when they request assisted dying. 

The legislation and model of care is now in effect. The first person to access assisted dying was Kerry Robertson, a 61-year-old woman with terminal cancer. Her daughters described her death as “peaceful and surrounded by love. It was the way she wanted to leave this world.”  

By using co-design as to bring organisations from across the sector together, we helped ensure all Victorians can access good end-of-life care, whatever that looks like for each person.

VAD casestudy image 04

 

If you're interested in working with us, just get in touch.

Email: hello@papergiant.net
Call: +61 (03) 9112 0514

 

A fortnightly update of our latest thinking, straight to your inbox.

Pink dash

Paper Giant Logo

Level 3
2 Russell Street
Melbourne,
VIC, 3000
Australia

Paper Giant acknowledges the Wurundjeri people of the Kulin nation as the traditional owners of the lands on which our office is located, and the traditional owners of country on which we meet and work throughout Australia. We recognise that sovereignty over the land has never been ceded, and pay our respects to Elders past, present and emerging.